T1D DATA & SAMPLES available for RESEARCH USE

INNODIA hosts longitudinal data and biological samples collected from individuals newly diagnosed (ND) with Stage 3 T1D (monitored for up to 2 years) and from unaffected family members (UFM) tested for IAb and monitored after IAb detection. These data and samples were gathered as part of the EU-funded innodia.projects under Innovative Medicines Initiative (IMI2) Joint Undertaking (2015–2024). INNODIA – the non-profit international organization that evolved from the EU-funded innodia.projects - has been granted a license to use and share this data exclusively for research purposes (click here to see full list of the Data Licensors).

📄 Click here to see the full data type available DATA CATALOGUE 

🧪 Click here to see the list of biological samples available SAMPLE COLLECTION 

📄 Click here to see the full list of relevant docs LIST OF DOCUMENTS 

PBMCs from some of the donors are also available. If you are interested, please contact us at data@innodia.org. Please note that samples (including PBMCs) will only be shipped to EU countries and cannot be forwarded or reshipped outside of Europe from the recipients countries.

 

ARE YOU INTERESTED in GETTING ACCESS to this PRECIOUS INFORMATION and MATERIAL?

Learn how

If You want to access this data and/or the samples with annexed data, you have to follow a specific path. Namely:

1. Fill in the Data Access Request Form and submit to data@innodia.org.                    
2. Your Data Access Request needs to be reviewed by the Data Access Committee (DAC).                      
The DAC is a decision-making body composed of representatives of the Data Licensors from the past EU-funded innodia.projects (list of licensors). DAC is responsible for evaluating and approving/refusing all requests for access to the data to ensure that data use is novel, doesn't replicate previous or ongoing efforts, aligns with the research use of the license, and safeguards the rights of data subjects. DAC approval is mandatory as it is the adherence to the INNODIA Publication Policy.

You will receive feedback from the DAC outcome within 15 working days. If needed, DAC may request additional information to complete the assessment.

INNODIA will work with You to finalize the Data Use Agreement and cost coverage.

3. If the request has been approved and You also need to access samples, You need to fill in the Sample Access Request Form and email it to: data@innodia.org.                     
4. Your sample request form will be evaluated by the “INNODIA Expert Input Group on T1D Data & Samples” (Experts).                     
The Experts are representatives from the INNODIA Board with relevant knowledge and expertise in T1D samples. They are responsible for evaluating and approving all requests for sample access, ensuring their use aligns with the defined scientific research purposes and safeguards the rights of participants who agreed to make the samples available for research. Approval from the Experts is required to maintain compliance with legal and ethical standards, regulate the distribution of samples (which is permitted only within the EU), and oversee all sample-related decisions. Should the Experts approve sample requests, INNODIA will work with You to finalize the Data Use Agreement, the Material Transfer Agreement, and cost coverage.                 

5. Once all necessary documents are signed, You, will become a Data User and can receive samples, which will be shipped directly from the Biobank.

 

ARE YOU AN APPROVED INNODIA DATA USER?

What's next?

Data Users will:

  1. Receive access to see the granted data in a dedicated space in the INNODIA Data Lake, where all data are stored.
  2. Use the Data Lake as a “viewer” digital space (Read-only access).
  3. Analyse the data by picking either the Ubuntu WorkSpaces (Ubuntu Desktop Interface) or the Jupyter Virtual Private Machine (Jupyter Notebook) accessing systems, selected by the size of the data that needs to be analyzed.

    1. Ubuntu Desktop interface: Work online in cloud-based desktop environment to generate results using pre-installed Rstudio and/or python software and open clinical metadata in a tabular format. 

      (Results can be stored on the desktop interface and be transferred once generated).

    2. JupyterLab interface: Work online on the INNODIA virtual PC to generate results using Jupyter Notebook.

      (Costs depend on usage time and data size. Results cannot be stored on the INNODIA virtual private machine but need to be transferred once generated).

  4. Transfer the results either to a local server or a dedicated space in the INNODIA Data Lake. Costs depend on storage time and result size.

               (Costs depend on storage time and result size)

 

INNODIA Data Lake